Featured Speakers
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Amber Webb
Therapeutic Lead | Cardiovascular, US & Worldwide Patient Advocacy
BRISTOL MYERS SQUIBB
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Anders Blaedel
Senior Director
Lundbeck
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Belen Gonzalez Sutil
Associate Director, Patient Advocacy
ULTRAGENYX
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Carlos Martinez Villela
Former PAG & Social Programs Director, LatAm
Farmacon Global
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Carol - Anne Partridge
Founder/CEO/Chairperson
CDKL5 UK
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Durhane Wong Reiger
CEO Canadian Organization for Rare Disorders, Chair, Rare Diseases International, Vice Chair
Asia Pacific Rare Disease International
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Emma Sutcliffe
Global Patient Officer
Ipsen
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Fatima Scipione
Vice President Global Patient Affairs
Blueprint Medicines
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Hayley Chapman
Senior Program Director
Patient Focused Medicines Development (PFMD)
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Helen Allvin
Global Patient Advocacy Lead, Orion Corporation
Orion Pharma
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Jacose Bell
Global Patient Advocacy Lead
Spark Therapeutics
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Jaime Christmas
CEO
New Zealand Amyloidosis Patients Association
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Jill Dolgin
Executive Director, Global Patient Advocacy
AGTC
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Leilani Johnston
Industry Pharmacist and Rare Voices Patient Ambassador
ADPKD at RDSA (Rare Diseases South Africa)
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Luisa Strani
Director Patient Advocacy
Alexion
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Maia Thrift-Perry
Global Head, Patient Advocacy and Public Health Policy
BeiGene
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Marie-Neith de Loisy
Patient Engagement Head - France
Novartis
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Mathieu Boudes
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Shannon Altimari
Global Head of Advocacy to Outcomes, Oncology
GSK
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Stephanie Ludwig
Global Patient Partnership Chapter Lead - Neuroscience
Roche
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Theodora Varkonyi-Weisz
Head, Patient Advocacy and Public Affairs EMEA
Novartis Gene Therapies
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Thomas Bols
Head of Government and Patient Advocacy, EMEA & APAC, PTC Therapeutics
Inc.
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Tricia Mullins
Executive Director, Global Head, Early Patient Engagement & Professional Societies
(Ex-China) BEIGENE